The Dystonia Medical Research Foundation is packing September 12 with virtual fun to help us come together while keeping our distance! Gather with the Dystonia community for a special day raising awareness of Dystonia and funds for a cure. You’ll find a range of activities for everyone, from a Yoga Class to a special Zookeeper Talk to our very own Scavenger Hunt to a Costume Extravaganza!
Best of all, you can register free of charge – though you’ll want to purchase a Virtual Zoo Day tee shirt or even a “Family Pack” to fully join in the celebration. Visit www.letszoothis.swell.gives to find opportunities to register, purchase t-shirts and family packs, donate, and become a ZooGooder.
🦓 🐪 🦍 🐫 🐘 🦒 🦛 🦘 🦏 🐆 🐃 🐅
🦓 🐪 🦍 🐫 🐘 🦒 🦛 🦘 🦏 🐆 🐃 🐅
Date: Saturday, September 12, 2020
Time: 12:00pm EST
Posted in Inspiration
Tagged #LetsZooThis, Activism, Blepharospasm, Bronx Zoo, Deep brain stimulation, Dystonia, Dystonia Awareness Month, Dystonia Virtual Zoo Day, Fundraising, Generalized dystonia, Health activist, Movement disorder, Neurological disorder, Spasmodic dysphonia, Spasmodic torticollis, Torsin A, Zoo, Zoo Walk
Too often, I find myself apologetic over hurdles that come with Dystonia: I’m sorry it’s difficult to understand me…I can’t walk across the park…I need more time to finish this form. Worse are the silent apologies I make to myself. Why do I perpetually raise excuses for my condition as if responsibility for this annoying hoopla falls squarely on my shoulders? I possess greater control over my runaway temper than my speech or my stride. Dystonia arrived as an intruder on my doorstep, robbing me of some of my dearest possessions: clear speech, even gait, smooth handwriting, contraction-free enjoyment of life.
The perpetrators of this medical crime lurk deep inside my brain committing all kinds of chemical mischief. I’ve participated in a bunch of “line-ups” – ironically, I’m the one who’s scrutinized – but while a culprit surfaces in a blood test, the actus reus can’t be captured in a pretty picture and my “head shots” are dead-end streets. We know Mr. DYT1, my uninvited houseguest, orchestrates a mutant ninja protein – Torsin A – who’s ostensibly a key player in a conspiracy of neurological proportion involving a perplexing hoist of my brain with a modus operandi stumping even the most seasoned investigators. To complicate matters, a host of suspect genes orchestrating their own villainous behaviors are implicated in different forms of Dystonia.
On the bright side, I function as my own “neighborhood patrol,” doing my best to combat an ongoing bodily offense. I undertake every effort to keep the crime labs busy, proffering skin and blood samples, funky PET scans, functional MRIs…accompanied by eyewitness accounts of the damage inflicted on my landscape. Meanwhile, I remain a walking crime scene apologizing for acts I can’t explain. Perhaps my amends are best bestowed on the objects of my temper…
Posted in Health, Life
Tagged Conditions and Diseases, Dystonia, DYT1, Genetic disorder, Genetic mutation, Involuntary movement, Medical research, Movement disorder, Muscle contraction, Neurological disorder, Torsin A