Tag Archives: Neurological examination

One-Stop Shopping

12980877_sLast week I experienced health care at its finest in my own peculiar version of one-stop shopping, heading to the hospital for a day of consultations flowing from Psychiatrist to Fellow to Attending Neurologist to Physical Therapist. Now that’s what I call patient-centered care, yours truly the star of the show! With Movement Disorder, one’s neurologist is often the tip of a medical ice-burg floating down a river teeming with doctors and therapists. Why shouldn’t treatment resemble a “power trip” to the mall to score a broad swath of retailers?

Pushing our “main squeeze” to the side, chronic illness ushers in a host of ancillary issues shaping quality of life. We confront side effects from our meds, the practical repercussions of a body gone wild, a seesaw of energy and fatigue…not to mention those emotional highs and lows. Assembling our go-to team requires us to work as our own Offensive Coordinator, searching out appropriate therapies – hopefully with providers who take our insurance – in an effort to quarterback a game plan aimed at gaining elusive yards as we journey up the field. The big “Hail Mary” may lie outside our control but we gun for those small victories.

Getting to the nitty-gritty of my “medical spree,” what a treat to bask in the rays of a professional crew evincing an understanding of a slew of complicated relationships – Dystonia the hub driving the wheel. They proffered care with concern, proactively addressed side effects rather than prescribing recklessly, and showed due respect for the knowledge I contribute…after all, I qualify as my own expert witness! Meanwhile, I enjoyed a bout of medical room service where the farthest I strayed was a jaunt down the hallway to display my decidedly Dystonic swagger. If only I could coax this symphony of place and time out of follow-up therapy appointments. When health care gets things right, it’s really rather incredible how much “simpler” our lives could be.

A great big thank you to the Bachmann-Strauss Dystonia Center of Excellence at Beth Israel, putting a capital “P” in Patient-Centered Care and addressing our multi-disciplinary needs!

For more information on Dystonia and Parkinson’s Centers of Excellence, check out the following links:

The Movement Disorders Examination

My Fabulous Neurologist!

Touch your finger to your nose, then straight out towards the finger puppet. Oops, that was pediatric neurology. Feet on the floor, heel – toe, heel – toe. Now we’re going to draw spirals and write “today is a sunny day” while my arm engages in kinematic calisthenics. Then it’s time to strut my stuff. Occasionally, I even get to star in my own movie without a screen test. Julia Roberts, eat your heart out. Meanwhile, I daydream about shopping with my neurologist at Bloomingdale’s, where she lectures the evil saleslady on how that stunner of a cocktail dress will most definitely not be paired with heels but looks spectacular with my Aerosoles!

Once this mini workout session is concluded, we gab about the state of my movement affairs and the tease of a better tomorrow. Perhaps there’s a fresh-faced research study involving animal models (no, not Miss Piggy prancing down a runway in Versace). While the promise of medical science is encouraging, my tastes run to available and personally impactful therapeutics. Our version of walking on the wild side is to fiddle with my meds by s-l-o-w-l-y changing the dosage in excruciatingly small increments, a regimen that doesn’t sit well with my ever-burgeoning impatience. Really, is one tiny pill developed specifically for Dystonia too much to ask?