The Dystonia Medical Research Foundation is packing September 12 with virtual fun to help us come together while keeping our distance! Gather with the Dystonia community for a special day raising awareness of Dystonia and funds for a cure. You’ll find a range of activities for everyone, from a Yoga Class to a special Zookeeper Talk to our very own Scavenger Hunt to a Costume Extravaganza!
Best of all, you can register free of charge – though you’ll want to purchase a Virtual Zoo Day tee shirt or even a “Family Pack” to fully join in the celebration. Visit www.letszoothis.swell.gives to find opportunities to register, purchase t-shirts and family packs, donate, and become a ZooGooder.
🦓 🐪 🦍 🐫 🐘 🦒 🦛 🦘 🦏 🐆 🐃 🐅
#LetsZooThis
🦓 🐪 🦍 🐫 🐘 🦒 🦛 🦘 🦏 🐆 🐃 🐅
Date: Saturday, September 12, 2020
Time: 12:00pm EST
Link: www.letszoothis.swell.gives
Post DBS, my life has been revolutionized by a startling revelation: Traveling from Point A to Point B is as “effortless” as moving from one foot to the other! I exist in a surreality I never could have imagined. Who would have thought I’d ever be in a position to compare and contrast smooth and twisted gait! Conquering distance has become user-friendly. Has NYC shrunk? This on-the-go rookie well knows the act of walking straight is deceptively simple – even miraculous – and with profound effect. Now that all my ducks are lining up in a row, I attach new meaning to the words “independently mobile.”
Sir Isaac Newton, take note, my Dystonia has served as a vivid example of your 3rd Law of Motion gone haywire: For every [voluntary] action there’s an equal and opposite [involuntary] reaction.
Last month, I aced my starring role during neurosurgery. Now that my neurostimulators have been powered on, I find myself in a constant state of heightened hyper-awareness of my movements making my body the “star” of every moment.
I’ve been a blond, brunette and redhead. Now I sport a skinhead. At the altar of DBS, the sacrificial lamb is my hair. So how to make the best of my untenable situation when there’s no use crying over spilled milk? My go-to guy is my “secret weapon:” the handy PhD Dystonia forced me to earn in “Making Lemons Into Lemonade!”
I don’t buy printer ink without carefully investigating my options. You can only imagine how I approach a decision like bilateral brain surgery. Not a grain of sand is left unturned in my lab of microscopic dissection. Popping a new pill is one matter. A potential starring role in a two act surgical drama involving a drill, a brilliant neurosurgeon and two electrodes about to take a slip into my brain for an ongoing adventure of electrical proportion is quite another story!
Chronicles Of A Dystonia Muse 