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DMRF’s 3rd Annual Bronx Zoo Walk to Raise Funds and Awareness to Cure Dystonia
Pamela Sloate, New York City resident who recently underwent Deep Brain Stimulation, to Host
WHO: New Yorker, Pamela Sloate, who recently underwent Deep Brain Stimulation (DBS) for her dystonia, will lead and host the event. DBS is a neurosurgical procedure used to treat a variety of neurological disorders, including movement disorders such as dystonia. Electrodes are implanted in the area of the brain associated with dystonia and battery-powered stimulators — essentially brain pacemakers — are surgically implanted in the chest to deliver electrical stimulation to the brain. As a result of this procedure, the twisting motions in Pamela’s legs and feet have disappeared and she no longer uses a walker.
Dystonia is characterized by persistent or intermittent muscle contractions causing abnormal, often repetitive, movements, postures, or both. The movements are usually patterned and twisting, and may resemble a tremor. There are multiple forms of dystonia, and dozens of diseases and conditions may include dystonia as a symptom. No fewer than 300,000 people are affected in the United States and Canada alone.
The Dystonia Medical Research Foundation (DMRF), a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well being of affected individuals and families, will host the walk.
WHAT: 3rd Annual Bronx Zoo Walk comprised of people living with dystonia, their friends and families as well as members of the local medical community. People do not have to do a formal walk but are welcome to spend the day at the zoo and attend festivities centered on raising funds and awareness of dystonia. Family friendly festivities include face painting, caricatures, refreshments, event t-shirts and a raffle. $25 for adults, $15 for kids including all-day admission to the Bronx Zoo.
WHERE: The Bronx Zoo, Great Hall, 2300 Southern Boulevard, Bronx, NY. Use Southern Boulevard Gate to enter the zoo.
WHEN: Sunday, September 10, 9:30 a.m. EDT – 1:00 p.m. EDT Check in starts at 8:30 a.m. EDT.
HOW: Register on site or at https://dystoniafoundation.redpodium.com/bronx-zoo-walk