DMRF’s 5thAnnual Bronx Zoo Walk to Raise Money and Awareness to Cure Dystonia
Pamela Sloate, New York resident who recently underwent Deep Brain Stimulation to Host
WHO: New Yorker, Pamela Sloate, who 3 years ago, underwent Deep Brain Stimulation (DBS) will lead and host the event.DBS is a neurological procedure used to treat a variety of neurological disorders, including movement disorders such as dystonia. A battery-powered stimulator — essentially a brain pacemaker—is surgically implanted and delivers electrical stimulation to the areas of the brain associated with dystonia.
Dystonia is characterized by persistent or intermittent muscle contractions causing abnormal, often repetitive, movements, postures, or both. The movements are usually patterned and twisting, and may resemble a tremor. There are multiple forms of dystonia, and dozens of diseases and conditions may include dystonia as a symptom. No fewer than 300,000 people are affected in the United States and Canada alone.
The Dystonia Medical Research Foundation, (DMRF), a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well being of affected individuals and families will sponsor the walk.
WHAT: 5th Annual Bronx Zoo Walk comprised of people living with dystonia and families will participate in the walk. People do not have to do a formal walk. But are welcome to spend the day in the zoo and attend festivities centered on raising funds and awareness for dystonia. Family friendly festivities include face painting, games and door prizes. Refreshments will be served.
WHERE: The Bronx Zoo, 2300 Southern Boulevard, Bronx, N.Y.
WHEN: Sunday, September 8, 9:30 a.m. EDT – 1:00 p.m. EDT Check in starts at 8:30 a.m. EDT
You’re invited to cover
Contact: Mitchell Slepian
Dystonia is a neurological movement disorder affecting an estimated 250,000 Americans, one-third children. Dystonia causes uncontrollable muscle spasms that twist the body into involuntary movements and painful postures. It can strike children of all ages and disables adults in their primes. Dystonia is frequently misdiagnosed or goes undiagnosed, sending patients on a prohibitive search for answers.
About the DMRF
The Dystonia Medical Research Foundation is a 501©(3) non-profit dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of patients and families. They can be reached at 800-377-DYST or www.dystonia-foundation.org