16542931_sLast month, I aced my starring role during neurosurgery. Now that my neurostimulators have been powered on, I find myself in a constant state of heightened hyper-awareness of my movements making my body the “star” of every moment.

This new chapter in my DBS saga began at my first programming session. I arrived determined to keep rising expectations at bay. Deftly manipulating her remote control unit, my savvy programmer began to work her magic. She turned the key in the ignition and took each “launch pad” on my electrodes for a test ride in search of signs of rough driving ahead.

Like my oral meds, neurostimulation can exert unwanted “side effects.” Now that all systems are go, I’m perpetually on the lookout for an inimical twist, twitch, jerk, grimace or spasm as I continually search for signs that the electric pulses in my brain are exerting some untoward effect. I struggle to recall the details of my involuntary motions pre-DBS for purposes of comparison but find this to be a futile task thanks to the ever-changing choreography of my Dystonia.

In the meantime, I’m officially electronically enabled. I stand before you a BATTERY emPOWERED FEMALE “humming” strong at 2.5 volts! With my handy remote, I can power myself on and off like a TV set. Plug me into an outlet, and I’ll light up the room!

8 responses to “BATTERY emPOWERED FEMALE

  1. You always light up any room you are in!

  2. I’m really happy for you,you’re a strong woman. Good luck on your new journey.

  3. My best wishes for your successful programming. I’ve learned that it is sometimes quickly established, sometimes takes much longer. Hope yours is quick!

    • Bob, So do I!!! I’m not the most patient person but will do my best to hold patience during this process. Sorry I didn’t have a chance to say hello at the Bronx Zoo Walk, I’m thrilled you were there. -Pam-

  4. Congratulations! Sounds like a wonderful new journey you’re on…where you can hopefully control most of the steps that lie ahead. Best of luck with the programming and future travels.

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