Life On Venus

The physical experience of movement disorder can be awkward, uncomfortable, stressful, frustrating, even embarrassing…all of which tend to exacerbate symptoms, a vicious cycle. Sometimes the only way to cope is to find humor in the situation.

This blog is an invitation into my world for a topsy-turvy ride replete with involuntarily contracting muscles caused by a gene named DYT1 that messes with a protein called Torsin A. In my peculiar game of Twister, the spinner’s out of control:  left leg blue–red–yellow (perhaps even purple, off the board!), right arm green–no–red, right leg yellow–blue–green, left arm red–wait–blue. All my limbs are active players, some with feature roles.

8 responses to “Life On Venus

  1. What a beautifully written, upbeat blog. Your courageous approach to living with dystonia is inspiring!

  2. You truly are inspiring! Love your blog!

  3. I’ve had Dystonia for almost 3 years. I can’t imagine having it any longer. Thank you for taking the time to do this Blog for others who feel the same way. peace, cin

  4. Thank you for sharing your stories and with such great humor! It is great to know that there are others out there who totally understand what having dystonia is about! Keep those stories coming!

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